Our Stories - Read and submit stories of fellow sufferers.

 

Kira (Queensland) SM, ACM, EDS-This all started when I was 12, I woke up with pins and needles down the right side of my body and what I can only described as losing my depth perception. We went to the doctors who noticed I had Nystagmus.I was sent to hospital for a CT scan and a neurological exam, which showed nothing of interest (Though I went from being able to do pointe work at ballet to not being able to walk heel to toe). I got diagnosed with an Acute Cerebellum Ataxia (crazy name for the cerebellum just not working – for me because of a viral infection I had.) and left to it....(read more)

 

Janelle (Queensland) - For me my story really only begins August 2009. To understand how I came to realise I had a problem, I need to explain about my background. I was an Olympic swimmer from 1988 Seoul Olympics. I developed Viral meningitis in 1996 and was hospitalised for 1 week. Once retired I continued to keep fit with swimming, surf swimming, jujitsu and running etc.

                                

 

Karen (International) - For me it started five years ago.  I did not have a gradual onset of symptoms.  Over the years that predate the real                                          onset I had "vague" symptoms.  I had shoulder aches, vertigo, rapid heartbeat but a normal EKG.  The symptoms were sporadic and no                                          doctor ever found anything wrong with me.  Then the pain started, no holds barred pain....(read more)

 

                                

Glenna (International) SM - I was diagnosed with scoliosis when I was 15, but my parents opted to not have it treated.  As the years went on,                                  I completely forgot I even had it.  I never bothered me.  I never had back pain of any kind.  Fast forward to Christmas Eve 2004.  I was                                                wrapping presents in my bedroom.  Suddenly, out of nowhere, I had the most excruciating pain of my life...(read more)

If you wish to submit a story for publishing please contact us at chiariaustralia@gmail.com

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